We're one week into Walk Kansas and I met my weekly goal. I think I would of done more but it was cold and WINDY. I'll try harder this week. I enjoy it once I get started. Seven more weeks to go. I hope by then I make it a habit and continue to walk most days. Small improvements.
The last few years I seem to have let go of everything that I ever once liked. I need to change that. In small increments I think. When it seems like you put your life on hold it's hard to just jump back in. Somehow I'd thought when everyone was healthy again (and not all are yet) life would just take up where it left off. But I find it's not that easy.
It seems that once Cushing's came into our lives everything else for me slowly dropped away. I don't even know how to describe it & I'm not sure I noticed it happening until it was all gone. There were days I thought that I couldn't wait for life to be "normal" again. I now find that "normal" no longer exists and I don't know what to do about it.
In some ways I feel a lot like I did for the first year after Mom died. And only just this minute did that occur to me. Maybe I'm grieving. There is a lot to grieve. No ones' life is what it used to be. And it never will be. We will go on from here and life will be good again it just won't be what we had envisioned.
Now that I'm out and walking I need to also start taking control of the house. Mainly the sewing room at the moment. In the last couple of months it seems to have acquired a lot of things from other rooms. Things that really didn't belong there but now I must find a place for them or I have no room to sew - literally.
I will start in small steps, take care of ten things each day. Just ten things, no matter how small, it will still be more than I am doing now. This has made me remember that one year I decided to save all my change from every purchase I made. I always paid with all bills so that I would get change back. I also got change when I wrote checks. For years I'd always rounded my check up to the next dollar and got back change. Then I had change for the kids and it was easier to subtract. I started putting that in a savings account so I wouldn't be tempted to use it. At the end of the year I had $600!!! That's a lot of money when you think it all came from change and was never missed.
Cleaning the sewing room will be the same way. Ten things at a time and one day it will be done.

I have an appointment for J&J with a doctor from Overland Park who comes to Hays once a week. I've kind of put off looking for a local endo. For us local means three hours to Denver. Hays is only an hour and a half.
Dr. Watson is a DO (Doctor of Osteopathic Medicine) and I've heard that he is very good with hormones. I figured it's worth a shot to see if he can keep an eye on things for the kids.
When I called for an appointment I explained their situation (Cushing's, BLA, etc) just to get an idea if he would even want to take them on. When I got a call back the next day the gal told me that he thought it sounded interesting and he was up for a challenge. We got reqs in the mail for blood work before the appointment which isn't until April. The good thing is that it's the same day I go to Hays to see my GI.
My Guess is that if he is good with hormones he'll probably be fine for us.
Tonight we started our walking for Walk Kansas. Jess & I and all the female Klipperts make up our team - The K's. Jess named us. The idea is for the team to put in enough miles in 8 weeks to make it across Kansas.
I haven't walked in a long time. I don't know why, I've always enjoyed it. We're doing our walking at the track. I've never walked there before. I really like it. No sidewalk cracks, no cars, no curbs, just walking. The track is close to Klippert's house, so it will be easy for them to come join Jess & I. Ashley walked with us tonight.

A high saliva will send Bill to surgery. There are some ready to send off. While waiting on those results I hope he continues to do more. Just in case.
Saturday, Bill's sister, Linda, came over & they & Justin did their blood draw to send to the researcher in England. Jess had already done hers. They are listed as "Family 81" on the paperwork that Dr. F emailed me. All except Linda have case numbers assigned. I'm wondering if we will ever hear anything about the study.
I'm guessing there must already be 80 other families in the study. Put that with all the family Cushing's connections there are on the board & I'm thinking the only reason for the study is to find out what the genetic link is, not if there is a genetic link.
Today starts "Walk Kansas". We'll see if our team of six can walk enough miles in eight weeks to make it across Kansas. It'll be good for me.