Okay, my appointment is over & I've had time to adjust. I had a drive-by with Dr. F. I came away with what I wanted and what I feel in my heart is the best choice for our family. The kids are both getting a referral for a BLA.
Got just a tad panicked when I got off the phone. Had to call for support, someone else who knows what I'm going through. Thanks Rene! While I was told a couple of weeks ago that the choice would be ours and he wouldn't "push" I felt like he pushed a lot. But.......
Now it is what it is. The kids are getting a BLA.
Dr. F said that with Bill, he'll have the pit surgery and we'll see where everything falls and then decide about the adrenal surgery. I'm still a bit confused on that though. He said it would be a unilateral adrenalectomy. But I'm not sure we know which one is coming out. Tumor showed on the left gland with an MRI but during AVS the right side was the one secreting excess aldosterone. So that's a little confusing. I'd just presumed that he would also have a BLA. Of course if his pit surgery is no more successful than the kids, I suppose he'd need one.
So now it's for real.
Jess called about an hour before they were scheduled to be home and said they were just leaving Boulder. Another mishap and someone went to the hospital.